A useful resource for the adults and new parents of children with Aniridia Syndrome. Very enlightening for teachers and people wanting to understand the AFI mission and who we help.
This book contains medical chapters, a chapter for teachers to teach low vision students, chapters highlighting the successes and struggles of those with Aniridia Syndrome, and more. This book has been reviewed by medical professionals as an excellent source.
Here is a REVIEW by a purchaser – Mother of a child with Aniridia Syndrome. “As soon as our daughter was diagnosed with Aniridia Syndrome four months ago (at 2 weeks old), my husband and I began researching and looking for resources to help us better understand what challenges we were going to be facing. The Internet was FULL of differing opinions and facts about Aniridia Syndrome and WAGR Syndrome and we soon became very frustrated at the lack of conclusive information about it. When I found this book on the Aniridia Foundation International website, I bought it immediately, then ordered 2 more shortly after for our families. Aniridia and WAGR Syndrome: A Guide for Patients and Their Families gave us an understandable explanation of the genetics behind Aniridia Syndrome, the reality of what challenges we could anticipate for our daughter, the names of numerous resources available to us, and practical ways to help our daughter live a happy life, but most importantly it gave us hope that she WILL be able to live a happy life! This book includes numerous personal stories of people living with Aniridia Syndrome, and while they are very REAL and sometimes heartbreaking because of the injustices that many of them have faced, they gave us hope that our daughter will have countless opportunities that we originally thought impossible! Thank you Jill and Jessica for this book!”