For some, your journey has just started, and others have a whole life full of experiences. Either way, you will be able to learn and share many things through Aniridia Foundation International.
For those that are looking to support a family member, friend, or if you are a philanthropist seeking a worthwhile cause to help children, the visually disabled or to support vision research, we welcome you to our website. Please contact us with any questions you may have.
In the past, there was little information and even less research about aniridia syndrome, mostly because ophthalmologists did not see many cases and are sometimes unfamiliar with its complexities. I felt the key to understanding this genetic congenital eye and medical disorder called aniridia syndrome, with the help of our Medical and Scientific Board physicians and researchers, was to unite those affected by this syndrome, their families, caring physicians, and determined researchers.
Since 2001, when we started as USA Aniridia Network and now doing business as (dba) Aniridia Foundation International (AFI), our team effort has made a real difference in the lives of many. We have made a difference by supporting families in the low vision community, educating and creating awareness about aniridia syndrome, and spearheading important research. But we still have a ways to go.
The core of AFI is centered on research-based projects such as our largest and most important project, the International Medical Registry and Gene Bank. In addition to helping those with aniridia syndrome, this program will advance research for various conditions which make up aniridia syndrome commonly found in the general population such as: glaucoma, retinal issues, corneal disease, low vision, diabetes, autism spectrum disorders, metabolic disorders and obesity. Having collaborations world-wide, the tools (our collection of data), and our AFI Medical and Scientific advisors assisting us we are able to make huge strides with your help. By working together we can accomplish many things!
You are not alone and we are here to help! We welcome you to join us and see how our "team" efforts can assist the low vision community, make advancements in research, improve patient care and one day, a cure.
Whether it is through your generous donations, your dedicated volunteering or participation in the research data collection, with your support you can Help Us Make that Miracle!
Jill Nerby, Founder, Aniridia Foundation International
Take a (No) #IrisSelfie to raise awareness and funds for aniridia syndrome!
We are doing this now as part of Rare Disease Day on February 28, 2015. It’s an initiative to bring together people affected by rare medical conditions like aniridia syndrome.
Click Here to Learn About Our 2013 Make A Miracle Conference!